Bruce Willis, known for his iconic roles in Hollywood, has been facing a significant health challenge since his diagnosis with frontotemporal dementia (FTD) in February 2023. This diagnosis came after his family announced his retirement in March 2022 due to aphasia.
FTD, a condition characterized by degeneration of nerve cells in the brain’s frontal and temporal lobes, affects behavior, language, and muscle control. Willis’ family has been open about his condition, sharing personal experiences to increase awareness and understanding of FTD, which is less known compared to Alzheimer’s disease.
Willis’ daughter, Scout Willis, expressed emotional exhaustion but gratitude for the support received since the announcement. His wife, Emma Heming Willis, who has become his primary caregiver, described the impact of FTD on their family, noting that it has changed her worldview and made her more compassionate. She also acknowledged the challenges and guilt associated with having more resources than others in similar situations.
FTD affects about 60,000 Americans, with symptoms varying greatly among individuals. In Willis’ case, initial signs included difficulties in communication and vagueness.
Andrew Budson, M.D., a neurologist, explained that FTD is caused by abnormal proteins damaging brain areas responsible for behavior and language. He noted that while there is no cure for FTD, treatments like medications and speech therapy can help manage symptoms. The life expectancy for someone with FTD is generally 7-13 years after diagnosis, but this can vary.
Willis’ family, including his daughters with ex-wife Demi Moore, have been actively involved in his care, focusing on maintaining engagement through music and touch. They have also become advocates for FTD awareness, sharing their experiences to connect with others facing similar challenges.
Bruce Willis, known for his roles in iconic films such as “Pulp Fiction” and the “Die Hard” series, has received an outpouring of support from fans and the broader community. His family’s openness in discussing his condition has been praised for bringing attention to FTD and the realities faced by those living with this and similar conditions.